Saturday, September 11, 2010

Lung Surgery. Part 1

Well....where have I been? Oh yeah thats right, in the hospital with another collapsed lung. This time it was wayy worse. I am out now, have been for about 2 months.m Here is how the whole story went.

I had gotten home from the beach on June 6, and June 7 I went to work. I came home and was un packing my stuff, and started to work on my family reunion that i was planning that was a 2 months away. I decided to go over to my aunts which is right across the road. I was in my car turned around to back up and I got a sharp pain, i said "oh great gas pains under my ribs, maybe my aunt will have some meds."

I drove over to her house, and made myself cougth really hard bc it was affecting the way I breatha, and somethimes if I do that it pushes the gas back down. That did not work it only made it worse, and my breathing sounded like you would be blowing in a kazoo.

I got out of my car ran to her door, said I cant breathe, and ran back to my car. Yes I know like that is going to help, but I had a nebulizer in there I thought might releive what was going on...wrong. My aunt came out to the car right after me, and was asking "Whats wrong? Tell me what to do." I told her im going to die, which that look on her face when I said that was horrific! Then I started having a pannack attack because I thought I was doing to die, and I wansnt ready to.

I felt like there was a 300 pound person sitting on my chest. All I kept doing was praying for me not to die, and worring about if I did, how upset my family and firends would be, and how hurt they would be, and that huirt me even more, and who would pay for all of my funeral arrangments, bc we are not wealthy just comfortable. My aunt ran to my house and got my oxygen, I kept checking my mails for a purple color, but I had none so I knew I was getting oxygen, enough to keep me alive. She brought it back over and the highest setting is two liters, which is not a lot when you cant breahte.

my aunt called my other aunt for back up. My aunt Fonda ran over to tell my dad, and my aunt Tammie stayed with me and rubbed my back. The ambulance finally came, and they got me ready to go. I saw my aunt Fonda crying on the porch when I was driving off, I knew I scared her, I felt so bad about that.

My aunt Tammie told my dad I was ok, and she picked up my mother from work and away they went to the hospital. I was riding int he amulabce, I have never been in one, and they were going so fast. We got to the hospital and the ems guys never left my side.

I knew what was wrong with me. They said well lets get some blood work and a cat scan first. I said "NO! I know what is worng, my lung is collapsed, I have had this before, and I cnat breathe, so get a mobile xray, and get a sergon, and fix it now!!" Then I was super out of breath, and my O2 dropped. They did what I wanted. My lung was 100 percent collapsed. They believed me then...in te urgency.

The one doc that wasnt on my wrist band kept coming over to me, and just had a horriable bed side manner,, I think he was a doc in training bc I do not think he knew a toe from and ear. Ugh!! My boyfriend was getting sooo aggervated with him as well, I think he was about o punch him in the face. I didnt want him around me, he acted like I was completly stupid. Luckly I got a nice doc that told him to leave, and they sedated me a little and put the chest tube in.

I woke up, in sooo much pain, all I could do was cry, I could breathe, but cry still. As I held my boyfriends and my moms hand, the ordered some pain meds. My mom, boyfriend, and aunt would all take turns coming back to see me while I was still in the ER.

More to come...

Thursday, June 3, 2010

Everyone Deserves to Breathe Shirts!



New Empire Apparel — Changing The World, One Shirt at a Time!: "The proceeds will be donated to Ashley Drew and her family. Ashley is a graduate student in Instrumental Conducting at the University of Maine.She was born with Cystic Fibrosis and will be undergoing a double lung transplant."

Wednesday, June 2, 2010

1st collaped lung, w chect tube...


2008 Collapsed lung! WOW! Not fun!! Didnt know what was wrong with me, slept, sweated, went to work, then finally took my butt to the ER to find out that I had a collapsed lung. :o(

Beach!


Very excited! I leave for the Beach in 3 days!! Lets just hope my lungs cooperate! 2008 I couldnt go bc my lung collapsed, so my friends had togo without me. 2009 I was having trouble breathing, and the week after my lung had a small leak and I was hospitalized, but I had a great tan....So this year 2010 lets hope and pray that I am healthy and my lungs are too!!! :o)

Short of breath and pain in colar bone area?

yday at dinner I was finished with my dinner, and I started to get pain when I breathed in around my collar bones, and then tightness there...We went home, I did my medication and nothing helped. So I went to bed. I was getting oxygen alright, and could breathe fine and wasnt congested. Nothing to cough up. This morning my throat felt more closed off and tight especially when I tilted my head back, and I have this small weezing that will not go away even when i try to cough...so im thinking it swolen in there? I have no pain now, but when I breathe and swallow it feels like somthing is in there, when I burp, it feels like it has a hard time coming out. If I had an adams apple it would feel tight with pressure there....no not sure what the deal is. Im glad the pain is gone. I though maybe a panic attach? who knows, but they do not last this long.







I called my Doc...no word back yet.


Well a yeast infection in my throat from my levaquin...

My CF out and the open!


I have never really been open with my CF until I was about 17. I didnt want anyone to know I had it, not even my closest friends and def not the boys I liked! All through elementary school I was in and out, bc I was sick all the time. The kids never knew why, but my class would always send me get well cards (home made) every time I was out....which I loved getting them! I would be out for 2-3 weeks at a time, and somehow always managed to pass each grade (bc my mom or dad would go to the school and get my home work and I would do it in the hospital) NOW I am very open about it, and answer and qustions that anyone might have about it! I have been posting on fb, sending out letters, and invites about cf and rasing money for the walk we justhad on May 15th! I have had ppl that I went to school with not even know I had it! Guess I did a pretty good job hiding it huh? Well not anymore!! I think my parents being so strict on me growing up bc of my cf and bc they are just great parents, have made me turn into the person I am, and with out cf or them who would I be??? In trouble, jail, drugs?? who knows! I have seen my friends in high school turn out that way...and I am thankful that I have cf, bc I think that it has made me a better stronger person!! <3 <3 <3

Finally my Pulmozyme again!

Finally after calling, faxing, calling, faxing, messages after messages I finally get my Drs office to have my Dr just sign a simple piece of paper for medical nessisity and fax to the drug company. This was a 3 week process of all of this BS. I had to be mean to get want I wanted, and I hate being mean!! But girls gotta do what a girls gotta do!! Actucally now that I think of it its been almost 4!! 4 weeks that I have been with out it...I had gotten my part done which took about a week, but the other it was me hounding my drs office to get the sig. I mean im not just wanting it bc i want to snort my medication like some crack heads do....I need it to LIVE and BREATHE!! Well just thought Id vent, and FINALLY will have mymeds Monday!!